{"id":9125,"date":"2018-05-24T22:42:06","date_gmt":"2018-05-24T21:42:06","guid":{"rendered":"https:\/\/www.myhealthspecialist.com\/blog\/?p=9125"},"modified":"2023-06-05T17:03:12","modified_gmt":"2023-06-05T16:03:12","slug":"caring-for-someone-with-dementia-5-things-you-can-do-at-home-to-support-both-of-you","status":"publish","type":"post","link":"https:\/\/www.myhealthspecialist.com\/blog\/2018\/05\/24\/caring-for-someone-with-dementia-5-things-you-can-do-at-home-to-support-both-of-you\/","title":{"rendered":"Caring for someone with Dementia?  5 things you can do at home to support both of you"},"content":{"rendered":"<p><img loading=\"lazy\" class=\"alignnone wp-image-9127\" src=\"https:\/\/www.myhealthspecialist.com\/blog\/wp-content\/uploads\/2018\/05\/shutterstock_523663939.jpg\" alt=\"Dementia\" width=\"600\" height=\"400\"><\/p>\n<p><strong><u>Introduction <\/u><\/strong><\/p>\n<p><span data-contrast=\"auto\">Dementia is a progressive disease, mostly affecting older adults, which, in addition to memory loss, can lead to problems with thinking, language, orientation and coordination. Whilst dementia is most classically associated with memory loss, a major part of managing or caring for someone with dementia revolves around behavioural and psychological symptoms of dementia (BPSD). Behavioural symptoms can include, restlessness, wandering, and in some cases, physical aggression which can be particularly distressing for carers.<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">&nbsp;<\/span><span data-contrast=\"auto\">Psychological symptoms associated with dementia can include anxiety, depression and even hallucinations. These symptoms can have a serious impact on a someone\u2019s quality of life, and whilst some can be managed with medications, there are an increasing number of additional strategies that carers and health professionals caring for patients with dementia can consider, which may benefit both patients and their carers. Recent research looked at methods to prevent wandering using a \u2018home-based missing incident prevention. The programme included strategies such as dementia education, assistive devices, skills training, environmental modifications, and redesigning of daily life routines. This programme was found to reduce the frequency of missing incidents (and searching time), as well as significantly reducing carer stress.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><strong><span class=\"TextRun Underlined SCXW158880409 BCX0\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW158880409 BCX0\">5 things that can support carers to care<\/span><span class=\"NormalTextRun SCXW158880409 BCX0\">:<\/span><\/span><span class=\"EOP SCXW158880409 BCX0\" data-ccp-props=\"{}\">&nbsp;<\/span><\/strong><\/p>\n<p><em>1.&nbsp;<\/em><strong><em>Education<\/em><\/strong><\/p>\n<p><span class=\"TextRun SCXW231503354 BCX0\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW231503354 BCX0\">Educating <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">carers<\/span> <span class=\"NormalTextRun SCXW231503354 BCX0\">about dementia, the progression of the disease and its management can have<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> considerable<\/span> <span class=\"NormalTextRun SCXW231503354 BCX0\">impacts<\/span> <span class=\"NormalTextRun SCXW231503354 BCX0\">on quality of life for both <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">the person <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">being cared for and their <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">c<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">arer<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">.<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> As dementia <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">can progress and may worsen over time,<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> having an idea of what is <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">expected<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> can give insight and <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">offer <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">time to prepare for the future<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">. M<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">ost<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> of the<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> non-<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">drug <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">management of dementia has carer education at it<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">s core<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">.<\/span> <span class=\"NormalTextRun SCXW231503354 BCX0\">I<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">mproving knowledge and understanding of dementia<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> has <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">been <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">shown to positive<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">ly<\/span> <span class=\"NormalTextRun SCXW231503354 BCX0\">impact<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> both patients and carers<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">.<\/span> <span class=\"NormalTextRun SCXW231503354 BCX0\">There are <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">several<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> excellent sites <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">that<\/span> <span class=\"NormalTextRun SCXW231503354 BCX0\">provide<\/span><span class=\"NormalTextRun SCXW231503354 BCX0\"> courses and free resources for carer <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">and patient <\/span><span class=\"NormalTextRun SCXW231503354 BCX0\">education:<\/span><\/span><span class=\"EOP SCXW231503354 BCX0\" data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<ul>\n<li><a href=\"https:\/\/www.dementiauk.org\">Dementia UK<\/a><\/li>\n<li><a href=\"http:\/\/dementia.stir.ac.uk\">DSDC, The Dementia Centre<\/a><\/li>\n<li><a href=\"https:\/\/patient.info\">Patient<\/a><\/li>\n<\/ul>\n<p><em>2.&nbsp;<\/em><strong><em>Sleep hygiene<\/em><\/strong><\/p>\n<p><span class=\"TextRun SCXW76512895 BCX0\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW76512895 BCX0\">Up to 35% of patients with dementia can have problems with sleep<\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">,<\/span><span class=\"NormalTextRun SCXW76512895 BCX0\"> including reduced sleeping time, poor sleep quality and sleep walking. <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">Many older adults experience sleeping problems, and these <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">can be<\/span><span class=\"NormalTextRun SCXW76512895 BCX0\"> exaggerated by dementia. <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">Whilst there are several medical-based solutions that can help with sleep, these all come <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">with potential<\/span><span class=\"NormalTextRun SCXW76512895 BCX0\"> risks and side effects <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">(some of <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">which <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">may outweigh<\/span><span class=\"NormalTextRun SCXW76512895 BCX0\"> their benefit)<\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">. There<\/span><span class=\"NormalTextRun SCXW76512895 BCX0\"> are several strategies that can be put in place at home to promote better \u2018sleep <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">hygiene \u2018that <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">essentially <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">encompass<\/span> <span class=\"NormalTextRun SCXW76512895 BCX0\">things <\/span><span class=\"NormalTextRun SCXW76512895 BCX0\">to aid sleep and improve the quality<\/span><span class=\"NormalTextRun SCXW76512895 BCX0\"> of sleep throughout the night<\/span><\/span><span class=\"EOP SCXW76512895 BCX0\" data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<ul>\n<li>Increasing day time activities and minimising daytime napping<\/li>\n<li>Regular exposure to natural light during the day<\/li>\n<li>Keeping to a reasonably regular routine<\/li>\n<li>Reducing caffeine intake<\/li>\n<li>Ensure regular toileting to avoid waking up in the night to go to the toilet<\/li>\n<li>Maintaining a good sleeping environment; a quiet, dark room with a comfortable temperature<\/li>\n<li>Avoiding going to bed having just eaten a large meal or feeling hungry<\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">It is also worth checking with a GP to make sure there is not an additional underlying cause of sleep disturbance such as heart or urinary problems. Again, research has shown that carer-education is key, and that there are significant benefits for patients whose carers implement an effective sleep hygiene programme.<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">it\u2019s important to remember that Carers need good sleep too! For more information, the <\/span><a href=\"https:\/\/sleepfoundation.org\/\"><span data-contrast=\"none\">National Sleep Foundation<\/span><\/a><span data-contrast=\"auto\"> has some great advice.<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><em>3.&nbsp;<\/em><strong><em>Exercise<\/em><\/strong><\/p>\n<p><span data-contrast=\"auto\">Physical exercise is already established to have widespread benefits amongst older adults for improved health. However, in the last few years, there has been research looking more specifically at the effects of exercise on patients with dementia, with a particular focus on BPSD. Activities such as aquatic exercises that focus on areas like strength, agility, balance, and coordination showed reduced BPSD and an overall improvement in general psychological wellbeing. Exercise-based activity has also been shown to help with carer burden and distress associated with BPSD.<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">In addition to helping with dementia-specific issues, exercise activities can have widespread physical and mental health benefits as well as providing a much-needed social interaction for both patients and carers who may become isolated.<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><em>4<\/em><strong><em>. Alternative therapies<\/em><\/strong><\/p>\n<p><span class=\"TextRun SCXW215720781 BCX0\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW215720781 BCX0\">In addition to exercise, there <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">are several<\/span> <span class=\"NormalTextRun SCXW215720781 BCX0\">additional<\/span> <span class=\"NormalTextRun SCXW215720781 BCX0\">activities<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> labelled \u2018alternative therapies\u2019<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> that have shown <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">to have some <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">benefit<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">. These can <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">range from<\/span> <span class=\"NormalTextRun SCXW215720781 BCX0\">engaging in normal hobbies such as music, <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">arts,<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> or anything of personal interest, to<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> the use of&nbsp;<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">&nbsp; aromatherapy and bright light therapy. These are <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">useful additions for some people to consider alongside their medical<\/span> <span class=\"NormalTextRun SCXW215720781 BCX0\">treatment and<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> can be instrumental in improving quality of life.<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> The <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">main areas<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> of improvement <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">can be <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">seen with music-based activit<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">ies<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> and aromatherapy<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> has been<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> show<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">n to <\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">reduc<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">e<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\"> levels of anxiety and agitation<\/span><span class=\"NormalTextRun SCXW215720781 BCX0\">.<\/span><\/span><span class=\"EOP SCXW215720781 BCX0\" data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><em>5.&nbsp;<\/em><strong><em>Caring for the carers<\/em><\/strong><\/p>\n<p><span class=\"TextRun SCXW110795737 BCX0\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW110795737 BCX0\">Caring for someone with dementia <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">can be <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">very challenging<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">. <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">Whether it be in a healthcare setting or at home, <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">and caregiver <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">strain <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">is <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">a frequent<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\"> phenomenon seen in car<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">er roles throughout healthcare.<\/span> <span class=\"NormalTextRun SCXW110795737 BCX0\">All<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\"> the strategies above have been shown to alleviate carer burden<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\"> in varying ways<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">, <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">and data collected from people who care for someone with dementia <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">has <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">show<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">n<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\"> that those that had higher levels of self-compassion <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">and self-care <\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">had improved coping strategies<\/span><span class=\"NormalTextRun SCXW110795737 BCX0\">.<\/span><\/span><span class=\"EOP SCXW110795737 BCX0\" data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p>There are several UK-based organisations that provide support, advice and help for carers:<\/p>\n<ul>\n<li><a href=\"https:\/\/www.carersuk.org\">Carers UK<\/a><\/li>\n<li><a href=\"http:\/\/www.careforcarers.org.uk\">Care for carers<\/a><\/li>\n<li><a href=\"https:\/\/carers.org\">Carers trust<\/a><\/li>\n<\/ul>\n<h6 class=\"p1\"><span style=\"color: #808080;\"><span class=\"s1\">This article is for information only and should not be used for the diagnosis or treatment of medical conditions. myHealthSpecialist makes no representations as t<\/span><span class=\"s2\">o the accuracy or completeness of any of the information in this article, or found by following any&nbsp;link from this article<\/span><span class=\"s1\">. Please consult a doctor or other healthcare professional for medical advice.<\/span><\/span><\/h6>\n<hr>\n<p><strong>&nbsp;<img loading=\"lazy\" class=\"alignnone wp-image-9131\" src=\"https:\/\/www.myhealthspecialist.com\/blog\/wp-content\/uploads\/2018\/05\/Bethan_Tyler.jpg\" alt=\"Bethan Tyler\" width=\"189\" height=\"189\"><br><\/strong><\/p>\n<p>Dr Bethan Tyler<\/p>\n<p>Emergency Department Clinical Fellow<\/p>\n\n\n<p><\/p>\n<!-- AddThis Advanced Settings generic via filter on the_content --><!-- AddThis Share Buttons generic via filter on the_content -->","protected":false},"excerpt":{"rendered":"<p>Introduction Dementia is a progressive disease, mostly affecting older adults, which, in addition to memory loss, can lead to problems with thinking, language, orientation and coordination. Whilst dementia is most classically associated with memory loss, a major part of managing or caring for someone with dementia revolves around behavioural and psychological symptoms of dementia (BPSD).&hellip; <a class=\"continue\" href=\"https:\/\/www.myhealthspecialist.com\/blog\/2018\/05\/24\/caring-for-someone-with-dementia-5-things-you-can-do-at-home-to-support-both-of-you\/\">Continue Reading Caring for someone with Dementia?  5 things you can do at home to support both of you<\/a><!-- AddThis Advanced Settings generic via filter on get_the_excerpt --><!-- AddThis Share Buttons generic via filter on get_the_excerpt --><\/p>\n","protected":false},"author":56,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[1],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v18.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>What is Dementia | Symptoms, Diagnosis, 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